Details
Title
Engagement in the Pediatric Rehabilitation lntervention Process: Its Nature, Measurement, and Role in the Determination of Outcomes
Funding
Canadian Institutes of Health Research (CIHR) Operating Grant: MOP-133397, 2014-2020
Lead Investigator
Gillian King
Partners
- Weisman Children’s Rehabilitation Hospital (Marlton, NJ, USA)
- Theraplay, Inc. (West Chester, PA, USA)
- Grow Thru Play, LLC (Philadelphia, PA, USA)
- Cindy Miles and Associates (Whitehall, PA, USA)
- Service Access and Management, Inc. (Berks County, PA, USA)
- Thames Valley Children’s Centre (London, ON, Canada)
- Tender Ones Therapy Services (Dacula, GA, USA)
- The Floortime Center (Washington, D. C., USA)
- Therapy Bridges, LLC (Allentown, PA, USA)
- KenCrest (Multiple Locations, USA)
- The Delaware Physical Therapy Clinic (Newark, DE, USA)
- Liberty POST (Buffalo/Niagara Region) (Buffalo, NY, USA)
- Mainely Kidz PT (Saco, ME, USA)
- Waypoint Pediatric Therapies (Issaquah, WA, USA)
- WeeTalk (Reading, PA, USA)
- Pediatric Therapy Professionals, Inc. (New Castle, PA, USA)
- ABC Therapies, LLC (Moncks Corner, SC, USA)
- First Step Therapy Services (Wind Gap, PA, USA)
- Sovia Therapy (Mechanicsburg, PA, USA)
- Speaking from the Heart, Inc. (Exton, PA, USA)
- TEIS, Inc. (Pittsburgh, PA, USA)
- Heartspring (Wichita, KS, USA)
- Sunny Days, Inc. (Havertown, PA, USA)
- ARC Alliance (Eagleville, PA, USA)
- UCP of Central PA (Multiple Locations, PA, USA)
Measures of engagement being created/developed:
PRIME-C
Pediatric Rehabilitation Intervention Measure of Engagement – Child
The child or youth’s perspective on their own engagement.
PRIME-PC
Parent-Rated Measure of Child Engagement
The parent’s perspective on their child’s engagement. This is targeted at parents who typically attend their child’s therapy sessions.
PRIME-G
Pediatric Rehabilitation Intervention Measure of Engagement – General
The parent’s perspective on their own engagement in their child’s therapy. This is targeted at parents who typically attend their child’s therapy sessions. The PRIME-G focuses on global engagement (engagement across the intervention) versus engagement in a particular session (PRIME-P).
Parts of Project
Sample: Service providers, children/youth, and parents at Holland Bloorview Kids Rehabilitation Hospital
Type of Data: One-time in-depth interview about client engagement
For example, we are asking children/youth and parents about times they felt really involved at sessions and times when they felt not at all involved. As another example, we are asking service providers about what strategies they use to engage clients in their sessions.
These interviews will enable us to have a rounded and varied perspective on client engagement. The information we gather will help inform the measures we have created and are creating on client engagement.
Sample: Service providers, children/youth, and parents at Holland Bloorview Kids Rehabilitation Hospital and through our partner sites in Pennsylvania – Theraplay, Grow Thru Play, and Cindy Miles and Associates.
Type of Data: Real-time observations of sessions, using fieldnotes and a rating form of client engagement. Interviews with the participants in the study, which can be a service provider combined with a parent, or a service provider combined with a youth (when the parent does not typically attend sessions), after the observed session. The rating form enables rating of aspects of engagement such as the use of strengths-based language, and non-verbal behaviours indicative of engagement. The fieldnotes enables an understanding of the context (e.g. who is present, what is happening), and a way to note observed behaviours that can later be clarified in the follow-up interview (e.g., when X happened, how did that make you feel?). The rating form will provide a quantitative measurement of client engagement and the fieldnotes and interviews will provide qualitative information on a specific session. The information we gather will further help inform the measures we have created and are creating on client engagement.
Sample: Service providers, children/youth, and parents at Holland Bloorview Kids Rehabilitation Hospital and through our partner sites in London, Ontario, Canada (Thames Valley Children’s Centre), Pennsylvania, USA – Theraplay, Grow Thru Play, Cindy Miles and Associates, Service Access and Management, and Therapy Bridges, New Jersey, USA – Weisman Children’s Rehabilitation Hospital, Georgia, USA – Tender Ones Therapy Services, Washington, D. C., USA – The Floortime Center, (Multiple locations), USA – KenCrest, Delaware, USA – The Delaware Physical Therapy Clinic, New York , USA – Liberty POST, Brisbane, Australia – Life Skills Clinic and Queensland Children’s Hospital, and Chicago, USA – Shirley Ryan AbilityLab.
Type of Data: Children/youth, parents, and service providers will complete our quantitative measures of engagement at two timepoints during a block of intervention to assess test-retest reliability. Children/youth and parents will complete our quantitative measures of engagement at multiple timepoints during a block of intervention to investigate validity and responsiveness of the engagement measures. Validity will be assessed by examining the relations between the engagement measures and the Self-reported Experiences of Activity Setting (SEAS), the Dimensions of Mastery Questionnaire (DMQ), the Peer Nomination Scale of Expertise in Pediatric Rehabilitation, the Self-Nomination Scale of Expertise in Pediatric Rehabilitation, and the Effective Listening and Interactive Communication Scale (ELICS).
Sample: Service providers, children/youth, and parents at Holland Bloorview Kids Rehabilitation Hospital and through our partner sites in Philadelphia – Cindy Miles and Associates, and Weisman Children’s Rehabilitation Hospital, and Chicago – Shirley Ryan AbilityLab
Type of Data: We will use our quantitative measures of engagement to see how they relate to the Canadian Occupational Performance Measure (COPM). This will allow us to explore the predictive validity of the engagement measures as the COPM is an important outcome variable in the pediatric rehabilitation process.
